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From: Rosalee
Date: 19 Oct 2010
Time: 13:58:07 -0500
Remote Name: 66.78.105.2
Your question is an important one and I have been thinking about it for some time before responding. I think that one responsibility of the consumer organizations could be to help the PWS make a well informed decision about treatment. This would involve putting forward the scientific evidence that exists to support any treatment, and matching that with the clinician's expertise and client's objectives and expectations. Living in this era of internet and social networking, we are faced with an abundance of ideas about stuttering treatment, some of them probably good value and others perhaps rubbish. I think that the national organizations could take the lead in helping the PWS to sort through some of this information. I am not sure about the route to take in doing this but feel that this might be a good dialogue between the professional and the consumer.