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From: Beth B
Date: 21 Oct 2012
Time: 19:07:42 -0500
Remote Name: 71.246.249.138
Thanks for your comments! I think it's hard for some in the disability community to see PWS as fellow PWD. After all, PWS don't have problems getting into buildings, we don't need medical care for our condition (other thank speech therapy), it's not life threatening, and we can see and hear. And it's often not visible until we open our mouths. But what they don't see is the huge iceberg that lies under the surface of what they see and hear us doing. They don't see the fear and shame and struggle that we go through every day. And for those of us whose stuttering is pretty severe, it can be extremely debilitating in all aspects of our lives. So I think it takes education and advocacy on both sides.