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From: Jonathan Wong
Date: 23 Apr 2010
Time: 16:24:34 -0500
Remote Name: 204.16.156.82
Wow! Loved your paper. It totally sounds like our story. I have not yet heard of anyone else with pretty much the same issues as my boy. My son (now 15) is still struggling with cluttering. Good progress has been made in the last couple of years, once cluttering was identified. He was also diag'd with PDD-NOS and also classified in the Aspergers realm - mostly due to his lack of social skills, like theory of mind. I see you spent some quality time teaching social skills, ie eye contact. Does that training fall in the realm of an slp? I guess to some extent it should. What other social skill type training falls under the umberella for an slp? How is Claudias social life? Ie, does she have lots of friends? Does she make an effort to be social? My son is a pretty happy go lucky kid and tries hard to make friends. He has a hard time sustaining a conversation, im sure his cluttering doesnt help, but at the end of the day, he goes home alone. He tends to be a loner at school (8th grade) and usually only plays with kids within the family. What type of social group therapy does Claudia attend? Can you refer us to something out here in Northern California? We've been deseperately looking for something for years. He is either too old or just doesnt fit the group, as most groups are for kids that are severe on the spectrum. We are currently trying to aquire the SpeechEasy device to help him self monitor and self regulate his rate of speech which in turns helps with his thoughts. Does Claudia have issues with thought process? Have you considered utilizing a SpeechEasy? My son is going to HS next year. Theyre going to be brutal with him in public school. So we've decided to put him in a private Christian school, where it should be a more nuturing enviroment for him. Has Claudia had to deal with other kids making fun? Jon did and still does. He used to just blow it off or really didnt get it. I think he is starting to realize now. What are your thoughts about self advocation of cluttering? Any tips? Sorry for all the questions, but your paper was truly inspiring and gives us new found hope for my sons management of his cluttering. Thanks.