support organizations

Support Organizations for PWS

Stories behind logos for Support Organizations for PWS

The Need for and Role of Support Groups

Adolescents who stutter: the urgent need for support groups (A Parent's Perspective) by Lee Caggiano.
The Role of Self Help/Support Groups in Determining the Outcomes of Stuttering Therapy by Lee Reeves.
Consumer Self-Help and Professional Associations by Charlie Diggs.
Peer Counseling and Self Help Group Facilitation for People Who Stutter - developed by Michael Sugarman.
Psychological Self-Help by Dr. Clay Tucker-Ladd, is a freely-available online book by a Ph.D. in Clinical Psychology

Starting and Maintaining a self-help group -

How to start and run a self-help group from CSA the Canadian Stuttering Association.
- Group activities
  - Ice Breakers
    - Icebreakers, Warmups, Energizers, & "Deinhibitizers" (www.wilderdom.com/games/Icebreakers.html)
    - Icebreakers from group-games.com (www.group-games.com/category/ice-breakers/)
    - Name Games & Get to Know Each Other Activities (www.wilderdom.com/games/NameGames.html)
  - Support Group Activities collected by Judy Kuster's Undergraduate Class in Fluency Disorders and submitted by many people from support groups (www.mnsu.edu/comdis/isad8/papers/kuster8.html)
  - Group Activities (www.slp.duq.edu/rentschler/STUTTERING/therapy_skills/act_group.htm) - from Gary Rentschler, including "My Favorite Activity for Stuttering Therapy: Lost at Sea" Gary Rentschler (www.mnsu.edu/comdis/isad9/papers/therapy9/rentschler9.html)
  - 101 Things to do - at an NSA chapter meeting (www.westutter.org/memberCenter/101-Things-To-Do.htm)
  - (http://www.mnsu.edu/comdis/isad4/papers/hicks2.html) by Russ Hicks (2001) provides several group meeting ideas
  - Speaking Freely (www.mnsu.edu/comdis/kuster/TherapyWWW/speakingcircles.html) by John C. Harrison.
  - A Conversation With My Stutter by Kevin Eldridge.
  - Jokes (http://thinks.com/jokes/index.htm)
  - NSA Chapter Meeting Activity (www.mnsu.edu/comdis/kuster/TherapyWWW/croll.html) designed by Angus Croll from the San Francisco chapter.
  - Stuttering Word Find by Tanya Banks can be adapted for a group meeting - find the words and discuss what they mean to you. Additional word search activities can be developed using the word search generators listed on this page.
  - International Stuttering Support Group Project by Michael Sugarman (www.mnsu.edu/comdis/isad8/papers/sugarman8.html)
  - A Group Therapy Experience for Adults Who Stutter a powerpoint by Ken St. Louis (www.mnsu.edu/comdis/isad10/papers/therapy10/stlouis.ppt)
  Support/Self-help groups around the world
  - Argentina
    - La Asociacion Argentina de Tartamudez
  - Australia
    - Speak Easy Association
      - Queensland Speak Easy
  - Austria
    - Oesterreichische Selbsthilfeinitiative Stottern
  - Brazil
    - Brazilian Stuttering Association
  - Bulgaria
    - Bulgarian Stuttering Association (SIZ)
  - Burkina Faso
    - Burkina Faso Stuttering Association
  - Belgium
  - Cameroon
    - SCAC - Speak Clear Association of Cameroon.
  - Canada
    - Association des bigues du Canada (ABC)
    - Canadian Stuttering Association
    - Speak Easy
    - The British Columbia Association of People who Stutter (BCAPS)
    - Other Canadian Organizations
    - Association des jeunes begues du Quebec, for young people who stutter between the ages of 2 and 25.
  - China
    - ISA Chinese website
    - China Stuttering Association
    - Nanjing Stutter Self-support Association
    - Shanghai Stuttering Association
  - Croatia
    - Hinko Freund - Croatian Association for People Who Stutter
  - Czech Republic
    - Czech self-help group for PWS http://www.oslogo.cz/kb/index.html
    - Klub Balbutiku
  - Denmark's Association for Stutters in Denmark homepage has information available in the Danish language.
  - Estonia's The Estonian Association of People Who Stutter
  - Finland's STAMMARFÖRENING rf (FS)
    - Finnish
    - English
    - Swedish
  - France
    - Association Vaincre le Bégaiement
    - Association Parole-Begaiement - (Speech-Stuttering Association)
  - Germany's Bundesvereinigung Stotterer-Selbsthilfe e.V., available in the German language
  - Links to Self Help Groups in Germany, inlcuding:
    - Stotterer-Selbsthilfegruppe Münster e.V.
    - Landesverband Stotterer-Selbsthilfe Nordrhein-Westfalen e.V
    - Stotterer-Selbsthilfegruppe Bielefeld e.V.
    - Stottern und Stotternde Online
    - Stotterer Selbsthilfe e.V. Berlin
  - Holland's Openingspagina van de Stottervereniging Demosthenes
  - Hungary's Demoszthenesz
  - Iceland's Icelandic Stuttering Association - Malbjorg in Icelandic
  - India
    - Indian Stammering Association
    - Swar Sudhar Society - information at the bottom of the page.
  - Ireland - Irish Stammering Association
  - Israel - The Israeli Support Group for People Who Stutter has information in Hebrew and English
  - Italy - Associazione Italiana per la Balbuzie e la Comunicazione
  - Japan's Japan Stuttering Homepage by the Japan Stuttering Project.
  - Latvian Stuttering Association (best accessed with Internet Explorer).
  - Nepal's Nepal Stutters Association.
  - New Zealand's Speakeasy Association
  - Nigeria's Stuttering Association of Nigeria
  - Norway's Norsk Interesseforening for Stamme
  - Scotland - Safety in Stumblers, a support group in Glasgow.
  - Pakistan Stammering Association
  - Scotland - BSA Scotland
  - South Africa's Speakeasy Stuttering Association
  - Spain's Funadcion:Asociacion Española de la Tartamudez
  - Sweden
    - Sveriges Stamningsföreningars Riksförbund
    - Self-Help-group for Stutterers, a local chapter in Stockholm.
  - Switzerland - Stottern in Zuerich a self-help group for people who stutter in Zurich, Switzerland (the list is in the German language).
  - Turkish Stuttering Association
  - United Kingdom
    - British Stammering Association
    - BSA: Scotland
  - United States
    - Friends: The Association of Young People Who Stutter
    - The National Stuttering Association (NSA) USA.
      - Overview and Brief History of the National Stuttering Association by Michael Sugarman, a paper written for the International Stuttering Awareness Day Online Conference, Oct. 1-22, 1999
        
        Dallas Chapter
        South Central Minnesota
        New York City Area
        Philadelphia Chapter
    - Speak Easy of New Jersey, and a short history of the organization
    - Stuttering Foundation of America - USA
      - Phone: 1/800-992-9392
        e-mail: stutter@vantek.net
      - Stuttering Foundation of America -- Looking Back and Looking Forward by Jane Fraser. A paper presented for the International Stuttering Awareness Day conference, October 1998.
  - Other Fluency Disorders Support Organizations
    - European League of Stuttering Associations
    - International Stuttering Association
    - International Fluency Association.
    - Other Organizations - by country
    - Passing Twice - an organization for gay and lesbian people who stutter.
    - ASHA's Special Interest Division #4, Fluency and Fluency Disorders.
    - International Cluttering Association
  Return to Index last modified September 16, 2009
  web weaver Judy Kuster
  
  X