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Support Organizations for PWS

Stories behind logos for Support Organizations for PWS

The Need for and Role of Support Groups

Adolescents who stutter: the urgent need for support groups (A Parent's Perspective) by Lee Caggiano.
The Role of Self Help/Support Groups in Determining the Outcomes of Stuttering Therapy by Lee Reeves.
Consumer Self-Help and Professional Associations by Charlie Diggs.
Peer Counseling and Self Help Group Facilitation for People Who Stutter - developed by Michael Sugarman.
Psychological Self-Help by Dr. Clay Tucker-Ladd, is a freely-available online book by a Ph.D. in Clinical Psychology

Starting and Maintaining a self-help group -

How to start and run a self-help group from CSA the Canadian Stuttering Association.
- Group activities
  - Ice Breakers
    - Icebreakers, Warmups, Energizers, & "Deinhibitizers" (www.wilderdom.com/games/Icebreakers.html)
    - Icebreakers from group-games.com (www.group-games.com/category/ice-breakers/)
    - Name Games & Get to Know Each Other Activities (www.wilderdom.com/games/NameGames.html)
  - Support Group Activities collected by Judy Kuster's Undergraduate Class in Fluency Disorders and submitted by many people from support groups (www.mnsu.edu/comdis/isad8/papers/kuster8.html)
  - Group Activities (www.slp.duq.edu/rentschler/STUTTERING/therapy_skills/act_group.htm) - from Gary Rentschler, including "My Favorite Activity for Stuttering Therapy: Lost at Sea" Gary Rentschler (www.mnsu.edu/comdis/isad9/papers/therapy9/rentschler9.html)
  - 101 Things to do - at an NSA chapter meeting (www.westutter.org/memberCenter/101-Things-To-Do.htm)
  - (http://www.mnsu.edu/comdis/isad4/papers/hicks2.html) by Russ Hicks (2001) provides several group meeting ideas
  - Speaking Freely (www.mnsu.edu/comdis/kuster/TherapyWWW/speakingcircles.html) by John C. Harrison.
  - A Conversation With My Stutter by Kevin Eldridge.
  - Jokes (http://thinks.com/jokes/index.htm)
  - NSA Chapter Meeting Activity (www.mnsu.edu/comdis/kuster/TherapyWWW/croll.html) designed by Angus Croll from the San Francisco chapter.
  - Stuttering Word Find by Tanya Banks can be adapted for a group meeting - find the words and discuss what they mean to you. Additional word search activities can be developed using the word search generators listed on this page.
  - International Stuttering Support Group Project by Michael Sugarman (www.mnsu.edu/comdis/isad8/papers/sugarman8.html)
  - A Group Therapy Experience for Adults Who Stutter a powerpoint by Ken St. Louis (www.mnsu.edu/comdis/isad10/papers/therapy10/stlouis.ppt)
  Support/Self-help groups around the world
  - Argentina
    - La Asociacion Argentina de Tartamudez
  - Australia
    - Speak Easy Association
      - Queensland Speak Easy
  - Austria
    - Oesterreichische Selbsthilfeinitiative Stottern
  - Brazil
    - Brazilian Stuttering Association
  - Bulgaria
    - Bulgarian Stuttering Association (SIZ)
  - Burkina Faso
    - Burkina Faso Stuttering Association
  - Belgium
  - Cameroon
    - SCAC - Speak Clear Association of Cameroon.
  - Canada
    - Association des bigues du Canada (ABC)
    - Canadian Stuttering Association
    - Speak Easy
    - The British Columbia Association of People who Stutter (BCAPS)
    - Other Canadian Organizations
    - Association des jeunes begues du Quebec, for young people who stutter between the ages of 2 and 25.
  - China
    - ISA Chinese website
    - China Stuttering Association
    - Nanjing Stutter Self-support Association
    - Shanghai Stuttering Association
  - Croatia
    - Hinko Freund - Croatian Association for People Who Stutter
  - Czech Republic
    - Czech self-help group for PWS http://www.oslogo.cz/kb/index.html
    - Klub Balbutiku
  - Denmark's Association for Stutters in Denmark homepage has information available in the Danish language.
  - Estonia's The Estonian Association of People Who Stutter
  - Finland's STAMMARFÖRENING rf (FS)
    - Finnish
    - English
    - Swedish
  - France
    - Association Vaincre le Bégaiement
    - Association Parole-Begaiement - (Speech-Stuttering Association)
  - Germany's Bundesvereinigung Stotterer-Selbsthilfe e.V., available in the German language
  - Links to Self Help Groups in Germany, inlcuding:
    - Stotterer-Selbsthilfegruppe Münster e.V.
    - Landesverband Stotterer-Selbsthilfe Nordrhein-Westfalen e.V
    - Stotterer-Selbsthilfegruppe Bielefeld e.V.
    - Stottern und Stotternde Online
    - Stotterer Selbsthilfe e.V. Berlin
  - Holland's Openingspagina van de Stottervereniging Demosthenes
  - Hungary's Demoszthenesz
  - Iceland's Icelandic Stuttering Association - Malbjorg in Icelandic
  - India
    - The Indian Stammering Association website and blog (an older site has not been updated since 2006 but does contain some information Indian Stammering Association)
    - Swar Sudhar Society - available to people who are part of a therapy program, but the site does contain some information of value.
  - Ireland - Irish Stammering Association
  - Israel - The Israeli Support Group for People Who Stutter has information in Hebrew and English
  - Italy - Associazione Italiana per la Balbuzie e la Comunicazione
  - Japan's Japan Stuttering Homepage by the Japan Stuttering Project.
  - Latvian Stuttering Association (best accessed with Internet Explorer).
  - Nepal's Nepal Stutters Association.
  - New Zealand's Speakeasy Association
  - Nigeria's Stuttering Association of Nigeria
  - Norway's Norsk Interesseforening for Stamme
  - Scotland - Safety in Stumblers, a support group in Glasgow.
  - Pakistan Stammering Association
  - Scotland - BSA Scotland
  - South Africa's Speakeasy Stuttering Association
  - Spain's Funadcion:Asociacion Española de la Tartamudez
  - Sweden
    - Sveriges Stamningsföreningars Riksförbund
    - Self-Help-group for Stutterers, a local chapter in Stockholm.
  - Switzerland - Stottern in Zuerich a self-help group for people who stutter in Zurich, Switzerland (the page is in the German language).
  - Turkish Stuttering Association
  - United Kingdom
    - British Stammering Association
      - Durham Stammering Support Group
    - BSA: Scotland
  - United States
    - Friends: The Association of Young People Who Stutter
    - The National Stuttering Association (NSA) USA.
      - Overview and Brief History of the National Stuttering Association by Michael Sugarman, a paper written for the International Stuttering Awareness Day Online Conference, Oct. 1-22, 1999
        
        Dallas Chapter
        South Central Minnesota
        New York City Area
        Philadelphia Chapter
    - Speak Easy of New Jersey, and a short history of the organization
    - Stuttering Foundation of America - USA
      - Phone: 1/800-992-9392
        e-mail: stutter@vantek.net
      - Stuttering Foundation of America -- Looking Back and Looking Forward by Jane Fraser. A paper presented for the International Stuttering Awareness Day conference, October 1998.
    - The Jewish Stuttering Association - support organization in New York
  - Other Fluency Disorders Support Organizations
    - European League of Stuttering Associations
    - International Stuttering Association
    - International Fluency Association.
    - Other Organizations - by country
    - Passing Twice - an organization for gay and lesbian people who stutter.
    - ASHA's Special Interest Division #4, Fluency and Fluency Disorders.
    - International Cluttering Association
  Return to Index last modified June 4, 2011
  web weaver Judy Kuster

Support Organizations for PWS

Stories behind logos for Support Organizations for PWS

The Need for and Role of Support Groups

Starting and Maintaining a self-help group -

Support/Self-help groups around the world