NEUROLOGY/NEUROGENIC DISABILITY

GENERAL NEUROLOGY

  • CHILD NEUROLOGY is part of the Neurology Web-Forum an interactive, online discussion forum about various Neurology-related topic.

  • CHILD-NEURO@WAISMAN.WISC.EDU is a child neurology list composed primarily of physicians and psychologists interested in child neurology issues. It is a closed list. To request subscription, send email to listserv@waisman.wisc.edu with information about your credentials, requesting to be added to child-neuro. The listowner is mack@waisman.wisc.edu

  • C-NET_ADULTNEURO@LISTSERV.ARIZONA.EDU is sponsored by the National Center for Neurogenic Communication Disorders at the University of Arizona. The focus of this list will be on professional concerns, cultural and reimbursement issues, as well as assessment and management problems and dilemmas, interesting cases, and research needs as they relate to neurogenic communication disorders in adults. In addition, questions by patients and family members will be welcome. To subscribe, send the following message to listserv@listserv.arizona.edu subscribe c-net_adultneuro. The list moderators are Lyn Turkstra and Audry Holland.

  • C-NET_CHILDNEURO@LISTSERV.ARIZONA.EDU is sponsored by the National Center for Neurogenic Communication Disorders at the University of Arizona. The focus of this list will be on professional concerns, cultural and reimbursement issues, as well as assessment and management problems and dilemmas, interesting cases, and research needs as they relate to neurogenic communication disorders in children. In addition, questions by parents and families will be welcome. To subscribe, send the following message to listserv@listserv.arizona.edu subscribe c-net_childneuro The list moderators are Elena Plante and Audrey Holland.

  • GENERAL NEUROLOGY is part of the Neurology Web-Forum an interactive, online discussion forum about various Neurology-related topic.

  • MOVEMENT DISORDERS is part of the Neurology Web-Forum an interactive, online discussion forum about various Neurology-related topic.

  • NEURO-BR@USA.NET is a list on neurology open to any professional that works in neurolgy or to any field that may be of interest to neurology. To subscribe, send the following message to maiser@usa.net subscribe neuro-br. The list owner is Marcia Maiumi Fukujima maiumi@sti.com.br).

  • NEURO@NEUROLIST.MCG.EDU is a forum for neurologists to discuss interesting problems and cases in neurology. This is a closed list. To request subscription send message to the list owner stating who are as well as your professional affiliation and your email address. The list operator is Michael Rivner

  • NEUROLOGY WEB-FORUM is an interactive, online discussion forumabout various Neurology-related topics.

  • NEUROMUSCULAR is part of the Neurology Web-Forum an interactive, online discussion forum about various Neurology-related topic.

  • NEUROPSYCH@MAILBASE.AC.UK is intented to facilitate discussion among psychologists interested in the area of neuropsychology. This could take many forms, from discussion of theory, requests for suggestions, rehabilitation queries, notice of conferences etc. It is open to anyone with an interest in neuropsychology. To subscribe, send the following message to mailbase@mailbase.ac.uk join neuropsych firstname lastname

  • NEURO_STIM-L@AVENZA.COM is a [CLOSED] majordomo mailing list about neuro-stimulator implants which are used to treat some neurological disabilities. To subscribe, send the following message to majordomo@avenza.com subscribe neuro_stim-l

  • NEWSGROUPalt.human.brain

  • NEWSGROUPbionet.neuroscience yourlastname.

  • STRENGTH-L@DNACO.NET is a list for those who have a form of neuromuscular disease and their families and friends. To subscribe, send the following message to strength-l-request@dnaco.net subscribe. The list owner is Tracy Mankins (turtle@dnaco.net)

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    ALZHEIMERS AND OTHER DEMENTIAS

  • ALZHEIMERS DISEASE is part of the Neurology Web-Forum an interactive, online discussion forum about various Neurology-related topic.

  • ALZHEIMER@WUBIOS.WUSTL.EDU is a discussion list for patients, professional and family caregivers, researchers, public policy markers, students and anyone with an interest in Alzheimers or related dementing disorders in older adults. To subscribe send the following message to majordomo@wubios.wustl.edu subscribe Alzheimer (no name necessary)

  • AMYLOID@NET.BIO.NET is a forum developed for researchers of Alzheimer's Disease and related disorders. To subscribe send the following message to biosci-server@net.bio.net subscribe amyloid The list moderator is David Small, david_small@muwayf.unimelb.edu.au

  • AMYLOIDOSIS is part of the Neurology Web-Forum an interactive, online discussion forum about various Neurology-related topic.

  • CANDID-DEMENTIA@MAILBASE.AC.UK (Counselling ANd Diagnosis In Dementia) is a discussion, support and advice forum for professionals and non-professionals looking after patients with young onset dementia (Pick's disease, Alzheimer's disease, Prion diseases and other unusual dementias). To subscribe, send the following message to mailbase@mailbase.ac.uk join candid-dementia firstname lastname

  • NEWSGROUPbionet.molbio.ageing

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    AMYOTROPHIC LATERAL SCLEROSIS

  • ALS is part of the Neurology Web-Forum an interactive, online discussion forum about various Neurology-related topic.

  • BRO@HUEY.MET.FSU.EDU is an electronic newsletter concerning amyotrophic lateral sclerosis that serves a world-wide ALS community of ALS patients, researchers, support groups, clinics, etc. To subscribe, unsubscribe, contribute notes, to ALS Digest, email bro@huey.met.fsu.edu The moderator is Bob Broedel.

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    BRAIN TUMOR

  • BRAIN CANCER is part of the Neurology Web-Forum an interactive, online discussion forum about various Neurology-related topic.

  • BRAINTMR@MITVMA.MIT.EDU is a forum to discuss topics related to all types of brain tumors whether beneign or malignant, where information and experiences will be shared among brain tumor patients, their supporters, all kinds of medical professionals and researchers who study brain tumor growth and treatment. To subscribe, send the following message to listserv@mitvma.mit.edu subscribe Braintmr firstname lastname The list owner is Samanth Scolamiero (samajane@athena.mit.edu)

  • HIRNTMR@RZ.UNI-KARLSRUHE.DE is a mailing list in the German Language about brain tumors for professionals and caregivers. (HIRNTMR ist eine Diskussionsliste auf der die Teilnehmer vom Besitzer angemeldet werden. Es soll hier ueber alles diskutiert werden koennen was mit dem Thema Hirntumor in Zusammenhang steht. Aber bitte in Deutsch Die Archivdateien sollten mit dem notwendigen Respekt behandelt werden, da es sich hier um ein privates Thema handelt).To subscribe send the following message to listserv@rz.uni-karlsruhe.de subscribe hirntmr firstname lastname. The listowner is Helmut Schiefer 100722.170@compuserve.com

  • NEUROFIBROMATOSIS CHAT ROOM is one of the Neurology Chat Rooms which host live interactive, online discussion about various

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    CEREBRAL PALSY and RELATED DISORDERS

  • CEREBRAL PALSY is part of the Neurology Web-Forum an interactive, online discussion forum about various Neurology-related topic.

  • C-PALSY@MAELSTROM.STJOHNS.EDU is a listserv about cerebral palsy. To subscribe, send the following message to listserv@maelstrom.stjohns.edu subscribe c-palsy firstname lastname

  • CPPARENT@MAELSTROM.STJOHNS.EDU is a list for discussion of issues relating to the parenting of children with cerebral palsy. Children as well as parents are invited to join in the discussion. To subscribe, email the following message to listserv@maelstrom.stjohns.edusubscribe cpparent firstname lastname

  • HEMI-KIDS@MAELSTROM.STJOHNS.EDU is a support list for parents of children with hemiplegia (cerebral palsy). To subscribe, send the following message to listserv@maelstrom.stjohns.edu subscribe hemi-kids yourfirstname yourlastname

  • HIJOS-ESP@LISTSERV.REDIRIS.ES is a mailing list in the Spanish language for discussion of issues relating to the parenting of children who have Cerebral Palsy (CP) or related conditions. Children, as well as parents, are invited to join in the discussion. To subscribe send the following message to listserv@listserv.rediris.es subscribe hijos-esp firstname lastname The list owner is Rafael Ibane (rafael.ibanez@uv.es)

  • NEWSGROUPalt.support.cerebral-palsy

  • NEWSGROUPalt.support.ataxia

  • CEREBELLAR ATAXIA is part of the Neurology Web-Forum an interactive, online discussion forum about various Neurology-related topic.

  • CORTICOBASAL GANGLIONIC DEGENERATION is part of the Neurology Web-Forum an interactive, online discussion forum about various Neurology-related topic.

  • PROGRESSIVE SUPRANUCLEAR PALSY is part of the Neurology Web-Forum an interactive, online discussion forum about various Neurology-related topic.

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    CREUTZFELDT-JAKOB DISEASE

  • CJD-L@RZ.UNI-KARLSRUHE.DE is a listserv about Creutzfeldt-Jakob Disease (CJD). To subscribe, send the following message to listserv@rz.uni-karlsruhe.de subscribe cjd-l firstname lastname

  • CREUTZFELDT JAKOBS is part of the Neurology Web-Forum an interactive, online discussion forum about various Neurology-related topic.

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    EPILEPSY

  • KIDSWITHEPILEPSY is to be a forum for kids with epilepsy to provide support to other kids with epilepsy. It will be a place for kids with epilepsy to share about themselves and their talents. Epilepsy is not who we are, but only a small part of our lives. A web-based subscription form is available

  • EPILESPY is part of the Neurology Web-Forum an interactive, online discussion forum about various Neurology-related topic.

  • NEWSGROUPalt.support.epilepsy

  • EPILEPSY-LIST@CALVIN.DGBT.DOC.CA is a forum for discussion of epilepsy and seizure disorders. To subscribe send the following message to listserv@calvin.dgbt.doc.ca subscribe epilepsy-list firstname lastname The moderator is Andrew Patrick (andrew@calvin.dgbt.doc.ca)

  • LANDAU KLEFFNER SYNDROME, a rare form of childhood epilepsy which results in a severe language disorder, is part of the Neurology Web-Forum an interactive, online discussion forum about various Neurology-related topic.

  • LANDAU KLEFFNER SYNDROME CHAT ROOM is one of the Neurology Chat Rooms which host live interactive, online discussion about various Neurology-related topic.

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    GENETIC/METABOLIC DISORDERS

    General

  • INBORN-ERRORS@MAILBASE.AC.UK provides discussion of research into inherited metabolic diseases, including: a) biochemistry and diagnosis b) genetics c) clinical, nutritional and treatment aspects and d) general discussion. To join send the following message to mailbase@mailbase.ac.uk join inborn-errors firstname lastname

  • TRISOMY-L@AVENZA.COM is an open unmoderated list for all people who are interested in Trisomy 18, Trisomy 13 and other related chromosomal disorders. This includes parents, family, friends and health care professionals. To subscribe, send the following message to majordomo@avenza.com"> subscribe trisomy-L your E-mail@address

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    Down Syndrome

  • DOWNS-RESEARCH@MAILBASE.AC.UK is a forum to discuss research on the social and cognitive functioning of children and adolescents with Down's syndrome. Topics may be theoretical or applied issues, the provision, implementation and evaluation of services and future research collaboration. To subscribe, send the following message to mailbase@mailbase.ac.uk join downs-research firstname lastname

  • DOWN-SYN@LISTSERV.NODAK.EDU is a forum for the discussion of Down Syndrome. To subscribe, send the following message to listserv@listserv.nodak.edu subscribe Down-syn firstname lastname

  • NEWSGROUPbit.listserv.down-syn

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    Fragile X

  • FRAGILEX@COUNTERPOINT.COM is a forum for the discussion of fragile X syndrome, a single-gene disorder which is the #1 cause of inherited mental retardation. The list will cover issues of interest to families, physicians, researchers, and educators, especially diagnosis and treatment. To subscribe send email to majordomo@counterpoint.com with the following message subscribe fragilex your_e-mail_address The listowner is Hal P. Kingsley (hal@counterpoint.com)

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    Huntington's Disease

  • HUNTINGTONS DISEASE is part of the Neurology Web-Forum an interactive, online discussion forum about various Neurology-related topic.

  • HUNT-DIS@MAELSTROM.STJOHNS.EDU is a support gropu for people affected by Huntingon's disease, including spouses, parents, and children of a person with Huntington's. To subscribe send the following message to listserv@maelstrom.stjohns.edu subscribe hunt-dis firstname lastname THe list owner is Storm A. King (stormk@netcom.com)

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    Muscular Dystrophy

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    Myasthenis Gravis

  • MYASTHENIA GRAVIS is part of the Neurology Web-Forum an interactive, online discussion forum about various Neurology-related topic.

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    Rett Syndrome

  • RETTNET@PALTECH.COM is a mailing list for caregivers of people with Rett Syndrome. To subscribe send the following message to listserv@paltech.comsubscribe rettnett firstname lastname

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    HIV / AIDs

  • HIV-L@RZ.UNI-KARLSRUHE.DE is an interdisciplinary discussion forum for German researchers who are interested in HIV disease. The language of the list is German. To subscribe, send the following message to listserv@rz.uni-karlsruhe.desub hiv-l yourfirstname yourlastname

  • HIV AND OTHER INFECTIOUS DISEASES is part of the Neurology Web-Forum an interactive, online discussion forum about various Neurology-related topic.

  • NEWSGROUPsci.med.aids - a moderated newsgroup on aids and the HIV virus

  • NEUROPSYCH-HIV-AID via eliot@netcom.com is a closed forum for discussion of psychological and neurobehavioral (including neurocognitive) dysfunction in individuals with HIV disease and to facilitate multidisciplinary sensitivity required of professionals engaged in clinical practice and/or research regarding individuals with HIV disease. This forum is open only to MDs, DOs, PhDs in clinical or counseling psychology, psychology graduate students and others on a case by case basis. To request consideration for joining, contact the list owner, eliot@netcom.com

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    MULTIPLE SCLEROSIS

  • MULTIPLE SCLEROSIS is part of the Neurology Web-Forum an interactive, online discussion forum about various Neurology-related topic.

  • NEWSGROUPalt.support.mult.sclerosis

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    PARKINSON'S DISEASE

  • PARKINSONS DISEASE is part of the Neurology Web-Forum an interactive, online discussion forum about various Neurology-related topic.

  • PARKINSN@LISTSERV.UTORONTO.CA is an information exchange network for individuals interested in Parkinsons Disease - including people with Parkinsons Disease, family members and friends, health care workers, researchers, and others working to know more about this disease. To subscribe, send the following message to listserv@listserv.utoronto.ca subscribe parkinsn firstname lastname The list contact is Barbara Patterson (patterso@fhs.csu.mcmaster.ca)

  • PARKINSON@LISTSERV.REDIRIS.ES is a Spanish language forum for those affected, family, friends and others interested in Parkinsons disease. Se trata de un foro para hispano parlantes, donde enfermos, familiares y especialistas interesados en la enfermedad del Parkinson pueden dirigirse para intercambiar experiencias personales y cuanta informacion nueva sobredicho tema vaya apareciendo. To subscribe, send the following message to listserv@listserv.redirirs.es subscribe parkinson yourfirstname yourlastname

  • PDNEWS on lyris@lyris.parkinsons.org.uk Parkinson's Disease News PDNEWS is an announcement list for people with Parkinson's, their families and caregivers, health care professionals, and other people with an interest in Parkinson's Disease matters. To subscribe send a regular email message to lyris@lyris.parkinsons.org.uk and in the body of the note, type SUBscribe PDNEWS Yourfirstname Yourlastname

  • PDUK@LISTSERV.NIPLTD.COM is a discussion list for people with Parkinson's, their families and caregivers, and health care professionals with an interest in Parkinson's Disease matters in the UK.To subscribe, send the following message to listserv@listserv.nipltd.com subscribe PDUK firstname lastname The list owner is Simon Coles

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    STROKE and TRAUMATIC BRAIN INJURY

  • NEWSGROUPbit.listserv.tbi-support

  • STROKE is part of the Neurology Web-Forum an interactive, online discussion forum about various Neurology-related topic.

  • STROKE SUPPORT ONLINE has several chats for stroke survivors and caregivers.

  • STROKE-BR@USA.NET is a list on stroke and cerebrovascular disease open to any professional that works with stroke patients. To subscribe, send the following message to maiser@usa.net subscribe stroke-br. The list owner is Marcia Maiumi Fukujima (maiumi@sti.com.br)

  • STROKE-L@LSV.UKY.EDU is a forum on cerebral-vascular disease for the exchange of ideas and information among professionals, stroke survivors and their support system. To subscribe, send the following message to listserv@lsv.uky.edu subscribe Stroke-L firstname lastname The listowner is Bob Moore

  • TBI-SPRT@MAELSTROM.STJOHNS.EDU is a forum created for exchange of information by survivors, supporters, and professionals concerned with traumatic brain injury and other neurological impairments. To subscribe, send the following message to listserv@maelstrom.stjohns.edu subscribe tbi-sprt firstname lastname The list administrators are Lee Burns (lburns@ucsce.ucsc.edu) and Tapati Amber Sarasvati

  • TRAUMATIC BRAIN INJURY is part of the Neurology Web-Forum an interactive, online discussion forum about various Neurology-related topic.

  • CAREGIVER-ONLINE@PEACH.EASE.LSOFT.COM is a discussion forum of the Family Caregiver Alliance Online Support Group. To join, follow the directions on the following website

  • TBI-SURV@TBINET.ORG is a ABI/TBI Survivors Support Group. To subscribe, send the following message to listserv@tbinet.org subscribe tbi-surv firstname lastname

  • CARE-TBI@TBINET.ORG started March, 1996 This is a list for parents, spouses or other family members who take care of a person or family member with a Brain Injury, professional caregivers are also welcome. This is a support list so we can exchange information and offer each other support. To subscribe, send the following message to listserv@tbinet.org subscribe care-tbi firstname lastname

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    TOURETTE SYNDROME
  • NEWSGROUPalt.support.tourette

  • POV-TWITCH@IGC.ORG is for people with Tourette Syndrome, parents of children with Tourettes, and professionals. To subscribe send the following message to majordomo@igc.org subscribe pov-twitch

  • TOURETTE SYNDROME is part of the Neurology Web-Forum an interactive, online discussion forum about various Neurology-related topic.

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    by Judith Maginnis Kuster
    copyright 1995, 1996, 1997, 1998, 1999, 2000, 2001, 2002, 2003, 2004, 2005
    last updated March 6, 2005