Getting Started: "NetFinds on Attention Deficit (Hyperactivity) Disorder "

by Judith Maginnis Kuster - Mankato State University (kuster@mnsu.edu).

Often sessions scheduled in the final time slot of any convention draw slim crowds, but this time, at the ASHA Convention in New Orleans last November, the large room was filled. The reputation of the presenter, Fran Prezant, and the timeliness of her topic: "ADD: Interaction with Language Processing and Implications for Speech-Language Pathologists," combined to keep participants around. Her presentation focused on describing Attention Deficit Disorder symptomatology as defined in the DSM-III, highlighting the overlapping characteristics of pragmatic language disorder. When she asked the audience how many of their training programs prepared them with informa8 s were raised. However, when asked how many needed this information to deal with their caseloads, nearly everyone responded affirmatively.

The following Internet resources provide information and assistance to deal with Attention Deficit (Hyperactivity) Disorder AD(H)D, a syndrome which is usually characterized by serious and persistent problems with attention span and impulse control, and in some cases, hyperactivity. AD(H)D is often seen in conjunction with other problems of the Central Nervous System including learning disabilities, tic disorders (such as Tourette's), and developmental delays, including speech.

There are at least four discussion groups on Attention Deficit (Hyperactivity) Disorder where persons living with AD(H)D in themselves or their family and others interested in this topic can find support and answers to their questions.

ADD-PARENTS on MAJORDOMO@MV.MV.COM is a discussion forum for parents of children with Attention Deficit Disorder. New subscriptions must be approved by the list moderator. To subscribe send the following message to majordomo@mv.mv.com subscribe add-parents (no name is necessary) or send a message to add-parents-approval@mv.mv.com. The list moderator is Duncan Gardner

ADDULT@sjuvm.stjohns.edu is a forum for Adults with Attention Deficit Disorders, to discuss the more personal aspects of living as or with an adult with ADD and for professionals who work with ADDults. To subscribe, send the following message to listserv@sjuvm.stjohns.edu subscribe ADDult yourfirstname yourlastname The list owners are Jim McLean-Lipinski and Dan Diaz

Another discussion forum which does not require subscription is a newsgroup:

alt.support.attn-deficit

Finally some commercial services have forums for those who pay for the on-line service. For example, America-on-Line has an ADD self-help discussion group.

In addition to the discussion forums there is an abundance of information on AD(H)D in gopher and WWW sites on the Internet.

Host: ERICIR.SYR.EDU
URL: gopher://ericir.syr.edu:70/11/Clearinghouses
Path:ERIC Clearinghouses/Clearinghouse on Disabilities and
Gifted/Clearinghouse on Disabilities Attention Deficit/

Meng Weng Wong's Attention Deficit Disorder WWW Archive

This World Wide Web site points to information on Attention Deficit (Hyperactivity) Disorder. Some of the information provided at this site includes:

Homepage for CHADD (Children and Adults with Attention Deficit Disorders) a nonprofit parent-based organization formed to better the lives of individuals with attention deficit disorders and those who care for them, has several fact sheets including

The Neurofeedback Archive contains several recent articles on the use of neurofeedback training for AD(H)D.

http://web.cs.mun.ca/~jamie/dsm4.html DSM IV criteria for Attention Deficit / Hyperactivity Disorders

A word of caution - the Internet is constantly growing and changing. Sometimes what is here today is gone or moved to a different location tomorrow. Everything listed above was available when this article was submitted, but may be out of date by the time you read this!


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Adapted from Kuster, Judith Maginnis (September 1995) NetFinds on Attention Deficit (Hyperactivity) Disorder, ASHA Magazine, p. 27-28.