EBP handout

Connecting With The World: "Netting For FREE Information And Intervention Materials

Judith Maginnis Kuster

Minnesota State University, Mankato

I. EXPLORING THE INVISIBLE AND THE VISIBLE WEB

ACCESSING PEER-REVIEWED INFORMATION ON THE INTERNET

A. The Free "Invisible Web"

Ä Cochrane Library - http://www.cochrane.org/reviews/clibintro.htm

abstracts - http://www.cochrane.org/reviews/index.htm

Ä Center for Reviews and Dissemination http://www.york.ac.uk/inst/crd/crddatabases.htm

Includes DARE - Database of Abstracts of Reviews of Effects

Ä Academy of Neurologic Communication Disorders and Sciences (ANCDS) http://www.ancds.org

Ä What Works Clearinghouse - http://ies.ed.gov/ncee/wwc/

Ä Campbell Collaboration - http://www.campbellcollaboration.org

several reviews "in progress" - check http://www.campbellcollaboration.org/ECG/titles.asp

example: Speech and language therapy interventions for children with primary speech and language delay or disorder

example: Effectiveness of Phonemic Awareness Training on Reading and Spelling Achievement in Elementary School Children

example: Effectiveness of Behavioral-Based Interventions for Stuttering in Children and Adolescents

example: The effects of the Picture Exchange Communication System (PECS) on prelinguistic behaviors, speech production, and expressive social regulation and communicative functions in children with Autism Spectrum Disorders (ASD)

Ä Evidence-Based Practice Briefs - http://www.speechandlanguage.com/ebp/index.asp

http://www.speechandlanguage.com/ebp/pdfs/2-4-december-2007.pdf - on stuttering

Ä ASHA's N-CEBP (http://www.asha.org/members/ebp/compendium/) members only

Ä Clinical Guidelines, Royal College of Speech & Language Therapists (2005) (http://www.rcslt.org/resources/RCSLT_Clinical_Guidelines.pdf)

Ä Agency for Healthcare Research and Quality (AHRQ) http://www.ahrq.gov

(http://www.ahrq.gov/clinic/uspstf06/speech/speechrev.htm)

Ä National Guideline Clearinghouse - http://www.guideline.gov/

(http://www.guideline.gov/summary/summary.aspx?doc_id=10861&nbr=005674&string=cerumen+AND+management)

ACCESSING PEER-REVIEWED LITERATURE ON THE INTERNET

Ä ERIC database - http://www.eric.ed.gov/

Ä PubMed - http://clinical.uthscsa.edu/pubmed/

(interface for MEDLINE, National Library of Medicine's bibliographic database)

Ä Combined Health Information Database (CHID) - http://chid.nih.gov

are prepared searches on CHID on aphasia, stuttering, TBI

example: http://www.ninds.nih.gov/disorders/rett/detail_rett.htm

Ä TRIP Database - http://www.tripdatabase.com/

example: http://www.ncbi.nlm.nih.gov/books/bv.fcgi?rid=hstat1.chapter.76986

Crieria for Determining Disability in Speech-Langauge Disorders

Computer Retrieval of Information on Scientific Projects (CRISP) - searchable database of federally funded biomedical research projects conducted at universities, hospitals, and other research institutions. - http://crisp.cit.nih.gov

OMIM - Online Mendelian Inheritance in Man - a catalog of human genes and genetic disorders http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=OMIM

A few additional examples where work on Efficacy Information in ComDis has started online

A FEW ONLINE EFFICACY BIBLIOGRAPHIES

Ä Efficacy in Dysphagia Treatment - http://www.dysphagia.com/reference

Ä Efficacy in Stuttering Treatment

http://www.mnsu.edu/comdis/efficacy/stutteringefficacy.html

Ä Efficacy Information on the Internet in Speech-Language Pathology and

Audiology - http://www.mnsu.edu/comdis/efficacy/efficacy.html

Ä Speech-Language Evidence Based Research -

http://www.utdallas.edu/library/callier/SLPEBM.htm

Ä ASHA's National Center for Treatment Efficacy Bibliography - Still available at http://callierlibrary.utdallas.edu/treatment_efficicy_bibliography.pdf

Ä (Bamford-Lahey efficacy bibliographies - no longer online, but still available at

http://web.archive.org/web/20070202124559/http://bamford-lahey.org/bibliographies.html)

FEE-BASED DATABASES AND RESEARCH INFORMATION

Ä EMBASE - http://www.embase.com - Gateway to Biomedical and

Pharmacological Information

Ä Cumulative Index to Nursing and Allied Health Literature

http://www.cinahl.com/prodsvcs/prodsvcs.htm - database - nursing and allied health.

Ä OVID - http://www.ovid.com - electronic medical, health and life sciences information solutions.

Ä OCLC FirstSearch - http://www.oclc.org/firstsearch a nonprofit, membership,

computer library service and research organization

Ä Ingenta - http://www.ingenta.com - comprehensive collection of academic and

professional publications available for online, fax and Ariel delivery

Ä HighBeam - http://www.highbeam.com/library/index.asp collection of

articles from leading publications, updated daily and going back as far as 20 years

Ä Psycinfo - http://www.apa.org/psycinfo - an abstract (not full-text) database of

psychological literature from the 1800s to the present.

Ä The Dome - http://www.comdisdome.com/

http://eresources.lib.mnsu.edu to Resources to General Resources

FREELY-AVAILABLE PROFESSIONAL RESEARCH PEER-REVIEWED RESEARCH INFORMATION

Ä ASHA Journals - (AJA (complete -1991-present), AJSLP (complete 1992-present) ,

JSLHR (complete 1997-present), LSHSS - 1990-present) Also has archive of back

journals - JSHD - 1990 (last year printed) and JSHR from 1990-1996. Great

member benefit! http://www.asha.org/members/deskref-journals/

Ä Free medical Journals Site - http://www.freemedicaljournals.com

Ä Hardin Library for the Health Sciences http://www.lib.uiowa.edu/hardin/md/ej.html

Ä High Wire Press http://highwire.stanford.edu/lists/freeart.dtl

Ä Directory of Open Access Journals - http://www.doaj.org/

Ä Journal of Fluency Disorders http://www.sciencedirect.com/science/journal/0094730X

Ä Journal of Stuttering Therapy, Advocacy and Research - www.journalofstuttering.com

Ä ASHA Conference Papers - Abstract archives starting with 2002 ASHA convention

http://search.asha.org/?col=conv&ql=a plus some convention handouts and some PPTs are available for the current the conventions. (2004 papers available at http://convention.asha.org/2004/handouts.cfm, 2006 papers available at http://convention.asha.org/2006/handouts.cfm, 2007 handouts are available at http://convention.asha.org/2007/handouts.cfm)

ProQuest Digital Dissertations - http://wwwlib.umi.com/dissertations

As a visitor, you will be able to freely access the most current two years of

citations and abstracts in the Dissertation Abstracts database

FREELY-AVAILABLEPROFESSIONAL LEARNING (SOME FOR ASHA CEUS)

Dysphagia Training

http://www.iidc.indiana.edu/training/DD%20Library%20Topics%20Health%20and%20Safety.htm

An Introduction to Autism

http://www.iidc.indiana.edu/training/DD%20Library%20Topics%20Supports%20and%20Therapies.htm

Genetics in the Practice of Speech-Language Pathology and Audiology

http://shla.nchpeg.org

International Stuttering Awareness Day Online Conferences http://www.mnsu.edu/comdis/kuster/isadarchive/onlineconference.html

SpeechPathology.com - http://www.speechpathology.com (free for students)

Audiology online - http://www.audiologyonline.com

Prentke-Romich - http://www.prentrom.com/training/asha

Passy-Muir - http://www.passy-muir.com

Linguisystems - http://www.linguisystems.com/ceu_intro.php

AAC Institute - http://www.aacinstitute.org

Non-peer-reviewed invisible web resources

INVISIBLE WEB RESOURCES - NOT PEER-REVIEWED

Ä Encyclopedia - http://wikipedia.org

Ä Newspapers - http://www.onlinenewspapers.com/

http://newslink.org/

http://news.google.com/

Ä Magazines - http://newslink.org/mag.html

Accessing discussion forums and searching archives (also provides opportunities for Personal Connections with those who have had experience)

Ä Archives of discussion forums

Ä mailing lists - subscribe to individual list for archives of past discussion

Ä listserv

Ä yahoogroups

Ä Floortime - http://groups.yahoo.com/group/Floortime/ - "This list will be best for parents and caregivers who are implementing a comprehensive program for their children with autism." - Greenspan list. Has over 1000 members!

Ä RecoveredKids - http://groups.yahoo.com/group/RecoveredKids/ - "This list is parents of kids recovered or on the road to recovery from autism." Have over 1600 members!

example: Parent reports of what worked for their kids on yahoogroups http://home.san.rr.com/autismnet/rollcall.html

Ä newsgroups - http://groups.google.com/groups/dir?usenet_st=0&sel=33554433

Dedicated Internet Databases and Webliographies/Subject Guides

DEDICATED DATABASES/WEBLIOGRAPHIES

Ä Internet Public Library (IPL) - http://www.ipl.org/div/sitesearch/

Ä Family Village - http://www.familyvillage.wisc.edu

Ä US Government Resources

Ä National Library of Medicine Directory of Health Organization

Online - http://dirline.nlm.nih.gov/

http://www.mnsu.edu/comdis/kuster/stutter.html

Ä National Institute on Deafness and Other Communication

Disorders (NIDCD) - http://www.nidcd.nih.gov

SUBJECT GUIDES

Ä Caroline Bowen's Communication Disorders Home Page

http://speech-language-therapy.com/

Ä Eric H. Chudler's Neurological Disorder Resources

http://faculty.washington.edu/chudler/disorders.html

Ä Guide to Otolaryngology Resources on the Internet (maintained by Aletta

Moore) - http://www.bcm.tmc.edu/oto/others.html

Ä Judith Kuster's Net Connections to Communication Disorders

http://www.communicationdisorders.com

B. The "Visible Web"

EXPLORING THE VISIBLE WEB

Ä Quackwatch - http://www.quackwatch.org

http://www.quackwatch.org/01QuackeryRelatedTopics/mentserv.html

Evaluate PERFORMANCE

Evaluate CONTENT

Additional "challenges"

A few "red flags"

Understand some "twists"

Key word challenges

Need to choose the tool carefully

Learn Boolean searches

Ä and - retrieves only item including all the

specified terms (some use +)

Ä OR - retrieves all items including any of

the specified terms

Ä not - excludes the term after it (some use -)

Ä many engines use quotations marks

Ä combine strategies

Ä learn "advanced searching"

Be willing to explore and learn new search engines

Requires practice

Don't get side-tracked!

Internet Directories

Ä open directory - http://www.dmoz.org/

Ä google directory - http://www.google.com/dirhp

Ä about.com - http://www.about.com

AutomatedSearch engines

Ä Yahoo - http://www.yahoo.com

Ä alltheweb - http://www.alltheweb.com

example: Hypernasal Speech Samples

http://www.acpa-cpf.org/EducMeetings/speechSamples/index.htm

example: stuttering in children

http://www.d.umn.edu/~cspiller/stutteringpage/onset.htm

Ä altavista - http://www.altavista.com

example: Inner ear - http://www.brucerosemanmd.com/id53.htm

Ä ask- http://www.ask.com/

example: Comparison chart - apraxia, dysarthria, severe

phonological disorder - http://www.apraxia-kids.org/site/apps/nl/content3.asp?c=chKMI0PIIsE&b=788447&ct=464135

Ä clusty - http://www.clusty.com

Ä google

http://www.google.com

example: Treatment Options - Autism Network Resources for Physicians Conventional Interventions

http://home.san.rr.com/autismnet/treatment.html

example: Greenspan's site - http://www.stanleygreenspan.com/

example: Hidden Laughter - http://www.hiddenlaughter.com/index.html

example: Relationship-Based Intervention, or Floor-Time by parent,

David Nelson - - http://www.mindspring.com/~dgn/davefaq.htm

example: Indiana Resource Center

http://www.iidc.indiana.edu/irca/SocialLeisure/playtime.html

example: What is Floor Time

http://www.gvsu.edu/forms/autism/What%20is%20Floor%20Time.pdf

example: Floor Time Stanley Greenspanπs Model

http://www.coping.org/intervention/ftpres/floortime.ppt

http://groups.google.com - search over 700 million posts of newsgroups for

the past 20 years!

alt.support.autism - join if you want, but, search function below works well

http://news.google.com

http://www.google.com/products - Product search (formerly froogle)

(SearchEdu.com - Searches university (educational) sites and provides links to search

military and government pages. Formats the Google feature for you.)

http://video.google.com - http://www.aphasia.tv

http://blogsearch.google.com

http://www.google.com/ig/usgov - http://www.genome.gov/12514288 Drayna

http://print.google.com

http://scholar.google.com/ - Google Scholar a specialized search function that

enables you to search specifically for scholarly literature, including peer-reviewed papers, theses, books, abstracts and technical reports from all broad areas of research.

http://maps.google.com

http://earth.google.com

A few additional special Google features

site:.gov stuttering

site:.edu stuttering

link:www.mnsu.edu/comdis/kuster/stutter.html

define:evidence based practice

related:www.asha.org

conversion, calculator, checking range of numbers

A few additional General Search Engines - not demonstrated

Ä netscape - http://search.netscape.com (uses Google)

Ä AOLsearch - http://search.aol.com/ (uses Google)

Ä AOL Video - http://video.aol.com/

Ä lycos - http://www.lycos.com (uses Ask)

Ä GoodSearch - http://www.goodsearch.com (uses Yahoo and each search goes to

a favorite charity)

Specialized/Unique Search Engines and Strategies

Ä SumSearch - http://sumsearch.uthscsa.edu/ - a unique method of searching for

medical evidence

Ä Scirus - http://www.scirus.com/srsapp/ - for scientific information

Ä Healthfinder - http://healthfinder.gov

Ä HONcode accredited sites - http://www.hon.ch/HONcode/Hunt

Ä Infomine - http://infomine.ucr.edu/ - scholarly internet resource collections

Ä Rhymezone - http://www.rhymezone.com/

Ä FindSounds - http://www.findsounds.com/types.html

Ä Podscope - http://www.podscope.com

Ä OneLook Dictionary - http://onelook.com

Search Engines/Directories Especially for Kids

Ä OneKey - http://www.onekey.com / - links to Google's safe search

Ä Yahoo kids - http://kids.yahoo.com/

http://www.azkidsnet.com/JSknockjoke.htm

Ä Ask for Kids - http://www.askkids.com/

http://msowww.anu.edu.au/~ralph/tt.html

Ä Zoo.com - http://www.zoo.com

Ä Family Filters - on many search engines - e.g. altavista, msnsearch

Ä Kids.Net.Au - http://kids.net.au - Australian search engine for kids

Ä Kids and Teens Open Directory - http://dmoz.org/Kids_and_Teens/

Ä Kidspace from Internet Public Library - http://www.ipl.org/div/kidspace/

Ä Teenspace Internet Public Library - http://www.ipl.org/div/teen/

Ä Berit's Best Sites for Children - http://www.beritsbest.com/

Meta search engines

Ä mamma - http://www.mamma.com - has a nice feature for searching for health

information

Ä dogpile - http://www.dogpile.com

example: NeedyMeds - http://www.needymeds.com

Ä excite - http://www.excite.com

example: http://www.meddean.luc.edu/lumen/MedEd/GrossAnatomy/cross_section/

Ä ixquick - http://www.ixquick.com

Ä metacrawler - http://www.metacrawler.com

Ä pandia - http://pandia.com

example - http://www.hbo.com/kinggimp/king/

Things to try if you get an "error message"

Check the URL very carefully!

Move backwards or use a search engine - the site may be reorganized

Check the cache in the search engines Google.com, Yahoo.com or Gigablast.com

Check Web Archive - http://web.archive.org - "Wayback machine"

Gigablast.com - which actually has a link to the wayback machine as well as

an archived (i.e. "cached") copy.

II. CONNECTING WITH COLLEAGUES

DISCUSSION FORUMS

The following is a sampling of discussion forums relevant to speech-language pathology and audiology. Most are open to anyone, some are closed. The forums and addresses were current when this was printed. Be aware that forums disappear or change locations, and new forums appear all the time, so there are no guarentees that what is listed will remain available, or that new and better ones haven't been formed.

Mailing Lists - most common is "listserv"

provide forums to discuss topics

host computer holds subscriber email addresses

message to the list address is relayed to all subscribers

subscription is free

most are "open"

Commands to remember

review

unsubscribe (or signoff)

Subscribing and using a listserv

Computer address - to subscribe, review, or unsubscribe

e.g. - listserv@lsv.uky.edu

List address - to send messages to all subscribers

e.g. stroke-l@lsv.uky.edu

Some warnings

1. don't believe everything you read

2. know where you are in cyberspace

3. don't subscribe to too many

4. use the delete key

5. use good subject lines

SEARCHING for Discussion Forums

Ä http://www.NEW-LIST.com - keyword searchable archives of a list announcing new lists.

Ä http://www.lsoft.com/lists/listref.html - Reference Site is a searchable catalog of nearly 60,000 public listsearch 2008of 391,600 listservs!)

Examples of mailing lists (listservs)

A few mailing lists relevant to SLPs

APRAXIA-KIDS@LISTSERV.SYR.EDU is a list parents and professionals interested in children with apraxia. To subscribe send following message to Listserv@Listserv.syr.edu subscribe Apraxia-kids firstname lastname

DOWN-SYN@LISTSERV.NODAK.EDU is a forum for the discussion of Down Syndrome. To subscribe, send the message subscribe Down-syn firstname lastname to listserv@listserv.nodak.edu

CAPD@LISTSERV.ICORS.ORG is a forum about Central Auditory Processing Disorders. To subscribe, send the subscribe capd firstname lastname to listserv@listserv.icors.org

STROKE-L@LSV.UKY.EDU is a forum on cerebral-vascular disease for the exchange of ideas and information among professionals, stroke survivors and their support system. To subscribe, send the message subscribe Stroke-L firstname lastname to listserv@lsv.uky.edu

ACOLUG@LISTSERV.TEMPLE.EDU (Augmentative Communication On-Line Users' Group) was created to exchange ideas, information and experiences on augmentative communication. To subscribe send the message subscribe acolug firstname lastname to listserv@listserv.temple.edu

SID3VOICE@LIST.MEDICINE.UIOWA.EDU.is an open mailing list for those interested in Voice. Subscribe by sending the following message to lyris@list.medicine.uiowa.edu, subscribe sid3voice firstname lastname.

DYSPHAGIA@B9.COM is an open mailing list. To subscribe, follow the directions on http://lists.b9.com/mailman/listinfo/dysphagia

STUTT-L@LISTSERV.TEMPLE.EDU is a mailing list for consumers and professionals interested in stuttering. To subscribe send the following message to listserv@listserv.temple.edu, subscribe stutt-l firstname lastname

Archives of mailing lists - must be a member to access

Ä stutt-l - http://listserv.temple.edu/archives/stutt-l.html

Examples of Yahoo Groups

Ä http://groups.yahoo.com - for creating independent mailing lists. You can subscribe through a web-based subscription http://www.yahoogroups.com/group/nameofthelist or by sending the following message to nameofthelist@yahoogroups.com nameofthelist-subscribe@yahoogroups.com

Several yahoo groups are very relevant to SLPs

PHONOLOGICALTHERAPY is a list for clinicians, including student clinicians, clinical phonology researchers and university teachers.

CHILDDEVDELAYS offers support to parents of children with developmental delays (speech and language, motor, cognitive, sensory, emotional and social, etc.).

SLPTALK is designed to provide a support network for speech-language pathologists.providing feedback and suggestions to one another..

CHILD_LANGUAGE is a forum for both information and support intended for parents of children with language disorders and professionals dealing with them. It consists mostly of people from India and deals primarily with autism spectrum disorders.

SLPSSTUTTERING is for SLPs who are interested in stuttering, want the latest research information, would like some ideas for kids/teens on their caseload and/or want to hang out on the list until they get a kid who stutters on their caseload.

LATETALKERS is a list about late talking children

LATETALKKIDS - this list supports families of late talking children who show strong analytical skills, which can include excellent memories, puzzle solving abilities and mechanical aptitudes. This is not a list for parents of autistic children but instead is a subgroup of late talking children who are not autistic.

SLPSCOMMUNICATE - a list for Speech/Language/Communication Professionals (SLPs, SLTs, CDAs, and SLAs) from around the world discussing therapy and intervention issues for children and adults with developmental disabilities.

NECKBREATHERS - for adults and teens who have trachs. To exchange information and to have fun.

STUTTERINGCHAT - Online support for people who stutter.

CLUTTERING - online list about cluttering

STROKESURVIVORS - A place to exchange our stories and information with others recovering from stroke, or providing care to stroke survivors.

CLUBRETT - is for adults who have a child with Rett Syndrome Angel in their life.

FRAGILEX - a forum for parents and family members of children who have fragile x syndrome, to share and help eachother through.

ABINEWS2U - is to inform, educate, and enlighten others about TBI (Traumatic Brain Injury) or ABI (Acquired Brain Injury)

BEYOND-HEARING is a support group for people with hearing loss, often partial or acquired.

TSVOICESURGERY - a group for women and men who have had or are considering surgery to raise (or lower) the pitch of their voice.

YAHOOGROUPS messages are also usually archived and available for group members to read at the web address for the mailing list. In fact you can subscribe to the list and not receive any email, just go to the archive and read what you want to. Sign onto a relevant yahoogroups and check the archives - many contain "treasures."

Creating Your Own Mailing List

Creating your own mailing/discussion list -- http://groups.yahoo.com -- Follow the directions to create your own mailing list (Start a New Group). It can be anything you want - a "cousin's list," a "family list," a "high school friends' list," a "let's exchange therapy ideas list," or whatever you want. Invite me to join. Then you can keep or delete your list.

Web-based discussion forums

Threaded discussions

Ä Speaking of Speech - http://members4.boardhost.com/monthlyquestion/

Ä BrainTalk Communities - http://brain.hastypastry.net/forums

Ä ASHA's discussion forums - http://www.asha.org/forums

Ä ISAD conferences - linked to http://www.stutteringhomepage.com

Newsgroups - http://groups.google.com/

Blogs

Ä http://scienceblogs.com

Clinical Cases - http://clinicalcases.blogspot.com

Ä http://technorati.com

Text/video chat