Judith Maginnis Kuster
Minnesota State University, Mankato
I. EXPLORING THE INVISIBLE AND THE VISIBLE WEB
ACCESSING PEER-REVIEWED INFORMATION ON THE INTERNET
A. The Free "Invisible Web"
Cochrane Library - http://www.cochrane.org/reviews/clibintro.htm
abstracts - http://www.cochrane.org/reviews/index.htm
Center for Reviews and Dissemination http://www.york.ac.uk/inst/crd/crddatabases.htm
Includes DARE - Database of Abstracts of Reviews of Effects
Academy of Neurologic Communication Disorders and Sciences (ANCDS) http://www.ancds.org
What Works Clearinghouse - http://ies.ed.gov/ncee/wwc/
Campbell Collaboration - http://www.campbellcollaboration.org
several reviews "in progress" - check http://www.campbellcollaboration.org/ECG/titles.asp
example: Speech and language therapy interventions for children with primary speech and language delay or disorder
example: Effectiveness of Phonemic Awareness Training on Reading and Spelling Achievement in Elementary School Children
example: Effectiveness of Behavioral-Based Interventions for Stuttering in Children and Adolescents
example: The effects of the Picture Exchange Communication System (PECS) on prelinguistic behaviors, speech production, and expressive social regulation and communicative functions in children with Autism Spectrum Disorders (ASD)
Evidence-Based Practice Briefs - http://www.speechandlanguage.com/ebp/index.asp
http://www.speechandlanguage.com/ebp/pdfs/2-4-december-2007.pdf - on stuttering
ASHA's N-CEBP (http://www.asha.org/members/ebp/compendium/) members only
Clinical Guidelines, Royal College of Speech & Language Therapists (2005) (http://www.rcslt.org/resources/RCSLT_Clinical_Guidelines.pdf)
Agency for Healthcare Research and Quality (AHRQ) http://www.ahrq.gov
National Guideline Clearinghouse - http://www.guideline.gov/
ACCESSING PEER-REVIEWED LITERATURE ON THE INTERNET
ERIC database - http://www.eric.ed.gov/
PubMed - http://clinical.uthscsa.edu/pubmed/
(interface for MEDLINE, National Library of Medicine's bibliographic database)
Combined Health Information Database (CHID) - http://chid.nih.gov
are prepared searches on CHID on aphasia, stuttering, TBI
TRIP Database - http://www.tripdatabase.com/
Crieria for Determining Disability in Speech-Langauge Disorders
Computer Retrieval of Information on Scientific Projects (CRISP) - searchable database of federally funded biomedical research projects conducted at universities, hospitals, and other research institutions. - http://crisp.cit.nih.gov
OMIM - Online Mendelian Inheritance in Man - a catalog of human genes and genetic disorders http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=OMIM
A few additional examples where work on Efficacy Information in ComDis has started online
A FEW ONLINE EFFICACY BIBLIOGRAPHIES
Efficacy in Dysphagia Treatment - http://www.dysphagia.com/reference
Efficacy in Stuttering Treatment
Efficacy Information on the Internet in Speech-Language Pathology and
Speech-Language Evidence Based Research -
ASHA's National Center for Treatment Efficacy Bibliography - Still available at http://callierlibrary.utdallas.edu/treatment_efficicy_bibliography.pdf
(Bamford-Lahey efficacy bibliographies - no longer online, but still available at
FEE-BASED DATABASES AND RESEARCH INFORMATION
EMBASE - http://www.embase.com - Gateway to Biomedical and
Cumulative Index to Nursing and Allied Health Literature
http://www.cinahl.com/prodsvcs/prodsvcs.htm - database - nursing and allied health.
OVID - http://www.ovid.com - electronic medical, health and life sciences information solutions.
OCLC FirstSearch - http://www.oclc.org/firstsearch a nonprofit, membership,
computer library service and research organization
Ingenta - http://www.ingenta.com - comprehensive collection of academic and
professional publications available for online, fax and Ariel delivery
HighBeam - http://www.highbeam.com/library/index.asp collection of
articles from leading publications, updated daily and going back as far as 20 years
Psycinfo - http://www.apa.org/psycinfo - an abstract (not full-text) database of
psychological literature from the 1800s to the present.
The Dome - http://www.comdisdome.com/
http://eresources.lib.mnsu.edu to Resources to General Resources
FREELY-AVAILABLE PROFESSIONAL RESEARCH PEER-REVIEWED RESEARCH INFORMATION
ASHA Journals - (AJA (complete -1991-present), AJSLP (complete 1992-present) ,
JSLHR (complete 1997-present), LSHSS - 1990-present) Also has archive of back
journals - JSHD - 1990 (last year printed) and JSHR from 1990-1996. Great
member benefit! http://www.asha.org/members/deskref-journals/
Free medical Journals Site - http://www.freemedicaljournals.com
Hardin Library for the Health Sciences http://www.lib.uiowa.edu/hardin/md/ej.html
High Wire Press http://highwire.stanford.edu/lists/freeart.dtl
Directory of Open Access Journals - http://www.doaj.org/
Journal of Fluency Disorders http://www.sciencedirect.com/science/journal/0094730X
Journal of Stuttering Therapy, Advocacy and Research - www.journalofstuttering.com
ASHA Conference Papers - Abstract archives starting with 2002 ASHA convention
http://search.asha.org/?col=conv&ql=a plus some convention handouts and some PPTs are available for the current the conventions. (2004 papers available at http://convention.asha.org/2004/handouts.cfm, 2006 papers available at http://convention.asha.org/2006/handouts.cfm, 2007 handouts are available at http://convention.asha.org/2007/handouts.cfm)
ProQuest Digital Dissertations - http://wwwlib.umi.com/dissertations
As a visitor, you will be able to freely access the most current two years of
citations and abstracts in the Dissertation Abstracts database
FREELY-AVAILABLEPROFESSIONAL LEARNING (SOME FOR ASHA CEUS)
An Introduction to Autism
Genetics in the Practice of Speech-Language Pathology and Audiology
International Stuttering Awareness Day Online Conferences http://www.mnsu.edu/comdis/kuster/isadarchive/onlineconference.html
SpeechPathology.com - http://www.speechpathology.com (free for students)
Audiology online - http://www.audiologyonline.com
Prentke-Romich - http://www.prentrom.com/training/asha
Passy-Muir - http://www.passy-muir.com
Linguisystems - http://www.linguisystems.com/ceu_intro.php
AAC Institute - http://www.aacinstitute.org
Non-peer-reviewed invisible web resources
INVISIBLE WEB RESOURCES - NOT PEER-REVIEWED
Encyclopedia - http://wikipedia.org
Newspapers - http://www.onlinenewspapers.com/
Magazines - http://newslink.org/mag.html
Accessing discussion forums and searching archives (also provides opportunities for Personal Connections with those who have had experience)
Archives of discussion forums
mailing lists - subscribe to individual list for archives of past discussion
Floortime - http://groups.yahoo.com/group/Floortime/ - "This list will be best for parents and caregivers who are implementing a comprehensive program for their children with autism." - Greenspan list. Has over 1000 members!
RecoveredKids - http://groups.yahoo.com/group/RecoveredKids/ - "This list is parents of kids recovered or on the road to recovery from autism." Have over 1600 members!
example: Parent reports of what worked for their kids on yahoogroups http://home.san.rr.com/autismnet/rollcall.html
newsgroups - http://groups.google.com/groups/dir?usenet_st=0&sel=33554433
Dedicated Internet Databases and Webliographies/Subject Guides
Internet Public Library (IPL) - http://www.ipl.org/div/sitesearch/
Family Village - http://www.familyvillage.wisc.edu
US Government Resources
National Library of Medicine Directory of Health Organization
Online - http://dirline.nlm.nih.gov/
National Institute on Deafness and Other Communication
Disorders (NIDCD) - http://www.nidcd.nih.gov
Caroline Bowen's Communication Disorders Home Page
Eric H. Chudler's Neurological Disorder Resources
Guide to Otolaryngology Resources on the Internet (maintained by Aletta
Judith Kuster's Net Connections to Communication Disorders
B. The "Visible Web"
EXPLORING THE VISIBLE WEB
Quackwatch - http://www.quackwatch.org
A few "red flags"
Understand some "twists"
Key word challenges
Need to choose the tool carefully
Learn Boolean searches
and - retrieves only item including all the
specified terms (some use +)
OR - retrieves all items including any of
the specified terms
not - excludes the term after it (some use -)
many engines use quotations marks
learn "advanced searching"
Be willing to explore and learn new search engines
Don't get side-tracked!
open directory - http://www.dmoz.org/
google directory - http://www.google.com/dirhp
about.com - http://www.about.com
Yahoo - http://www.yahoo.com
alltheweb - http://www.alltheweb.com
example: Hypernasal Speech Samples
example: stuttering in children
altavista - http://www.altavista.com
example: Inner ear - http://www.brucerosemanmd.com/id53.htm
example: Comparison chart - apraxia, dysarthria, severe
phonological disorder - http://www.apraxia-kids.org/site/apps/nl/content3.asp?c=chKMI0PIIsE&b=788447&ct=464135
clusty - http://www.clusty.com
example: Treatment Options - Autism Network Resources for Physicians Conventional Interventions
example: Greenspan's site - http://www.stanleygreenspan.com/
example: Hidden Laughter - http://www.hiddenlaughter.com/index.html
example: Relationship-Based Intervention, or Floor-Time by parent,
David Nelson - - http://www.mindspring.com/~dgn/davefaq.htm
example: Indiana Resource Center
example: What is Floor Time
example: Floor Time Stanley GreenspanΉs Model
http://groups.google.com - search over 700 million posts of newsgroups for
the past 20 years!
alt.support.autism - join if you want, but, search function below works well
http://www.google.com/products - Product search (formerly froogle)
(SearchEdu.com - Searches university (educational) sites and provides links to search
military and government pages. Formats the Google feature for you.)
http://video.google.com - http://www.aphasia.tv
http://scholar.google.com/ - Google Scholar a specialized search function that
enables you to search specifically for scholarly literature, including peer-reviewed papers, theses, books, abstracts and technical reports from all broad areas of research.
A few additional special Google features
define:evidence based practice
conversion, calculator, checking range of numbers
A few additional General Search Engines - not demonstrated
netscape - http://search.netscape.com (uses Google)
AOLsearch - http://search.aol.com/ (uses Google)
AOL Video - http://video.aol.com/
lycos - http://www.lycos.com (uses Ask)
GoodSearch - http://www.goodsearch.com (uses Yahoo and each search goes to
a favorite charity)
Specialized/Unique Search Engines and Strategies
SumSearch - http://sumsearch.uthscsa.edu/ - a unique method of searching for
Scirus - http://www.scirus.com/srsapp/ - for scientific information
Healthfinder - http://healthfinder.gov
HONcode accredited sites - http://www.hon.ch/HONcode/Hunt
Infomine - http://infomine.ucr.edu/ - scholarly internet resource collections
Rhymezone - http://www.rhymezone.com/
FindSounds - http://www.findsounds.com/types.html
Podscope - http://www.podscope.com
OneLook Dictionary - http://onelook.com
Search Engines/Directories Especially for Kids
OneKey - http://www.onekey.com / - links to Google's safe search
Yahoo kids - http://kids.yahoo.com/
Ask for Kids - http://www.askkids.com/
Zoo.com - http://www.zoo.com
Family Filters - on many search engines - e.g. altavista, msnsearch
Kids.Net.Au - http://kids.net.au - Australian search engine for kids
Kids and Teens Open Directory - http://dmoz.org/Kids_and_Teens/
Kidspace from Internet Public Library - http://www.ipl.org/div/kidspace/
Teenspace Internet Public Library - http://www.ipl.org/div/teen/
Berit's Best Sites for Children - http://www.beritsbest.com/
Meta search engines
mamma - http://www.mamma.com - has a nice feature for searching for health
dogpile - http://www.dogpile.com
example: NeedyMeds - http://www.needymeds.com
excite - http://www.excite.com
ixquick - http://www.ixquick.com
metacrawler - http://www.metacrawler.com
pandia - http://pandia.com
example - http://www.hbo.com/kinggimp/king/
Things to try if you get an "error message"
Check the URL very carefully!
Move backwards or use a search engine - the site may be reorganized
Check the cache in the search engines Google.com, Yahoo.com or Gigablast.com
Check Web Archive - http://web.archive.org - "Wayback machine"
Gigablast.com - which actually has a link to the wayback machine as well as
an archived (i.e. "cached") copy.
II. CONNECTING WITH COLLEAGUES
The following is a sampling of discussion forums relevant to speech-language pathology and audiology. Most are open to anyone, some are closed. The forums and addresses were current when this was printed. Be aware that forums disappear or change locations, and new forums appear all the time, so there are no guarentees that what is listed will remain available, or that new and better ones haven't been formed.
Mailing Lists - most common is "listserv"
provide forums to discuss topics
host computer holds subscriber email addresses
message to the list address is relayed to all subscribers
subscription is free
most are "open"
Commands to remember
unsubscribe (or signoff)
Subscribing and using a listserv
Computer address - to subscribe, review, or unsubscribe
e.g. - email@example.com
List address - to send messages to all subscribers
1. don't believe everything you read
2. know where you are in cyberspace
3. don't subscribe to too many
4. use the delete key
5. use good subject lines
SEARCHING for Discussion Forums
http://www.NEW-LIST.com - keyword searchable archives of a list announcing new lists.
http://www.lsoft.com/lists/listref.html - Reference Site is a searchable catalog of nearly 60,000 public listse
Examples of mailing lists (listservs)
A few mailing lists relevant to SLPs
APRAXIA-KIDS@LISTSERV.SYR.EDU is a list parents and professionals interested in children with apraxia. To subscribe send following message to Listserv@Listserv.syr.edu subscribe Apraxia-kids firstname lastname
DOWN-SYN@LISTSERV.NODAK.EDU is a forum for the discussion of Down Syndrome. To subscribe, send the message subscribe Down-syn firstname lastname to firstname.lastname@example.org
CAPD@LISTSERV.ICORS.ORG is a forum about Central Auditory Processing Disorders. To subscribe, send the subscribe capd firstname lastname to email@example.com
STROKE-L@LSV.UKY.EDU is a forum on cerebral-vascular disease for the exchange of ideas and information among professionals, stroke survivors and their support system. To subscribe, send the message subscribe Stroke-L firstname lastname to firstname.lastname@example.org
ACOLUG@LISTSERV.TEMPLE.EDU (Augmentative Communication On-Line Users' Group) was created to exchange ideas, information and experiences on augmentative communication. To subscribe send the message subscribe acolug firstname lastname to email@example.com
SID3VOICE@LIST.MEDICINE.UIOWA.EDU.is an open mailing list for those interested in Voice. Subscribe by sending the following message to firstname.lastname@example.org, subscribe sid3voice firstname lastname.
DYSPHAGIA@B9.COM is an open mailing list. To subscribe, follow the directions on http://lists.b9.com/mailman/listinfo/dysphagia
STUTT-L@LISTSERV.TEMPLE.EDU is a mailing list for consumers and professionals interested in stuttering. To subscribe send the following message to email@example.com, subscribe stutt-l firstname lastname
Archives of mailing lists - must be a member to access
stutt-l - http://listserv.temple.edu/archives/stutt-l.html
Examples of Yahoo Groups
http://groups.yahoo.com - for creating independent mailing lists. You can subscribe through a web-based subscription http://www.yahoogroups.com/group/nameofthelist or by sending the following message to firstname.lastname@example.org email@example.com
Several yahoo groups are very relevant to SLPs
PHONOLOGICALTHERAPY is a list for clinicians, including student clinicians, clinical phonology researchers and university teachers.
CHILDDEVDELAYS offers support to parents of children with developmental delays (speech and language, motor, cognitive, sensory, emotional and social, etc.).
SLPTALK is designed to provide a support network for speech-language pathologists.providing feedback and suggestions to one another..
CHILD_LANGUAGE is a forum for both information and support intended for parents of children with language disorders and professionals dealing with them. It consists mostly of people from India and deals primarily with autism spectrum disorders.
SLPSSTUTTERING is for SLPs who are interested in stuttering, want the latest research information, would like some ideas for kids/teens on their caseload and/or want to hang out on the list until they get a kid who stutters on their caseload.
LATETALKERS is a list about late talking children
LATETALKKIDS - this list supports families of late talking children who show strong analytical skills, which can include excellent memories, puzzle solving abilities and mechanical aptitudes. This is not a list for parents of autistic children but instead is a subgroup of late talking children who are not autistic.
SLPSCOMMUNICATE - a list for Speech/Language/Communication Professionals (SLPs, SLTs, CDAs, and SLAs) from around the world discussing therapy and intervention issues for children and adults with developmental disabilities.
NECKBREATHERS - for adults and teens who have trachs. To exchange information and to have fun.
STUTTERINGCHAT - Online support for people who stutter.
CLUTTERING - online list about cluttering
STROKESURVIVORS - A place to exchange our stories and information with others recovering from stroke, or providing care to stroke survivors.
CLUBRETT - is for adults who have a child with Rett Syndrome Angel in their life.
FRAGILEX - a forum for parents and family members of children who have fragile x syndrome, to share and help eachother through.
ABINEWS2U - is to inform, educate, and enlighten others about TBI (Traumatic Brain Injury) or ABI (Acquired Brain Injury)
BEYOND-HEARING is a support group for people with hearing loss, often partial or acquired.
TSVOICESURGERY - a group for women and men who have had or are considering surgery to raise (or lower) the pitch of their voice.
YAHOOGROUPS messages are also usually archived and available for group members to read at the web address for the mailing list. In fact you can subscribe to the list and not receive any email, just go to the archive and read what you want to. Sign onto a relevant yahoogroups and check the archives - many contain "treasures."
Creating Your Own Mailing List
Creating your own mailing/discussion list -- http://groups.yahoo.com -- Follow the directions to create your own mailing list (Start a New Group). It can be anything you want - a "cousin's list," a "family list," a "high school friends' list," a "let's exchange therapy ideas list," or whatever you want. Invite me to join. Then you can keep or delete your list.
Web-based discussion forums
Speaking of Speech - http://members4.boardhost.com/monthlyquestion/
BrainTalk Communities - http://brain.hastypastry.net/forums
ASHA's discussion forums - http://www.asha.org/forums
ISAD conferences - linked to http://www.stutteringhomepage.com
Newsgroups - http://groups.google.com/
Clinical Cases - http://clinicalcases.blogspot.com
Skype - www.skype.com/
Viruses, Hoaxes and Scams
Vmyths - http://www.vmyths.com/
Truth or Fiction - http://www.truthorfiction.com/
Snopes - http://www.snopes.com/info/search/search.asp
Computer Internet Advisory Site - http://www.ciac.org/ciac/
SEARCHING FOR PEOPLE ON THE INTERNET
http://www.switchboard.com - Switchboard
Like a CD-ROM telephone directory. Can search by complete name, last name only, last name and city. Has email search and map-making capabilities
http://www.anywho.com/ - Anywho
Phone and Address. Has a map-making feature, reverse phone number
feature and links to international directories.
http://people.yahoo.com/ - Yahoo's People Search
A large database of e-mail addresses and telephone number search.
http://peoplesearch.lycos.com/ - Lycos people search
Phone and Address. Has a web search option. Reverse phone number.
http://www.infospace.com/ - InfoSpace
has a reverse phone and address feature. Do not use periods and type exactly
http://zabasearch.com - Zaba Search
provides birthday month and home and business address free
http://www.theultimates.com - The Ultimates - like a meta search engine
http://www.google.com - Google's finding phone numbers
http://www.dogpile.com - white pages
http://www.fonefinder.net - Shows where area code and prefix is from.
http://www.mapquest.com - map and directions
http://maps.google.com - map and directions
http://professional.asha.org/members/ - ASHA directory
Accessible only to ASHA members. Members may search for other members, add or remove their listing, and check and update their listing.
http://www.clas.ufl.edu/CLAS/american-universities.html - Mike Conlon's
http://facstaff.uww.edu/bradleys/cdprograms.html - Scott Bradley's
Review appropriate mailing lists
Examples of public records online
http://www.ussearch.com/consumer/index.jsp - US Search - fee-based
http://www.knowx.com - some partial open records, most fee-based
http://publicrecords.netronline.com/ -- public records online, including property records
http://www.searchsystems.net - public records for various states
http://www.brbpub.com/pubrecsites.asp - free access to Public Records - over 1330 state, county, city and federal (court) URL's
http://www.blackbookonline.info/ - state criminal records for many states, federal prisoners, deadbeat docs who defaulted on student loans
Examples of genealogy resources online
http://www.ancestry.com/search/rectype/vital/ssdi/main.htm - Social Security Death Index
http://lists.rootsweb.com/ - nearly 25,000 genealogy mailing lists
http://www.familysearch.org - Church of Later Day Saints site
copyright - Judith Maginnis Kuster